For more policies relating to the services offered directly to the families and babies, children and young people in our care, please contact us at: firstname.lastname@example.org.
Who are Noah’s Ark Children’s Hospice?
Noah’s Ark Children’s Hospice is a community-based hospice service providing care and support for babies, children and young people with life-limiting or life-threatening conditions and their families in North and Central London and Hertsmere.
We are currently constructing The Ark, a specialist children’s hospice building, due to be operational in spring 2019.
Noah’s Ark Children’s Hospice is regulated by the Care Quality Commission www.cqc.org.uk and registered with the Fundraising Regulator www.fundraisingregulator.org.uk, and with the Information Commissioner in accordance with the General Data Protection Regulation.
What personal data we collect
Personal data is any information that can be used to identify you. The personal information we collect might include name, address, email address and telephone numbers.
If your family uses our services we will need to obtain up to date personal details, general medical and social care information including clinic letters, copies of prescriptions (FP10), emergency care and advance care plans, and other relationships you hold that are relevant, such as medical professionals and family members.
As a supporter of Noah’s Ark where appropriate or relevant, we may ask for event specific information, such as date of birth, emergency contacts, health information (relating to eligibility to participate) or dietary requirements; your reason for supporting or donating; other relationships you hold that are relevant, such as your employer or family members.
How we collect your personal data
We obtain personal information from you when a referral is made to us, when you make a donation to us, enquire about our events and activities, register with us, send or receive an email, ask a question about our services or otherwise provide us with your personal information.
In order to provide safe and effective care we collect and share personal data from other professionals including (but not limited to) schools, community teams, GPs, hospitals, local authorities and/or clinical commissioning groups.
We also gather your personal data from organisations providing fundraising services on our behalf, such as Your Hospice Lottery, JustGiving, Virgin Money Giving and Givey.
How we process your personal data
We may use your personal information for:
• Providing you with the services, products or information you asked for
• Processing your donations
• Supporting your fundraising activity
• Keeping a record of your relationship and communications with us
• Sending you fundraising and direct marketing communications about the work we do
• Managing your marketing preferences
• Complying with our legal obligations, policies and procedures
The safety of children is very important to us. We will only display the name of a child or family and associated information if we have consent from the family involved.
Data profiling and data appending
We may use personal information for analysis and profiling, to understand families’ and supporters’ interests and preferences, improve fundraising efficiency and help us make the most appropriate requests for support. On occasion we may also make use of publicly available demographic information. We will only use data collected in this manner for purposes to which you have consented.
From time to time we will use external data sources to maintain the quality and accuracy of postal contact details.
We would like to keep in touch with you about the work we do, our fundraising events and activities, our appeals and campaigns, and how your donations are used.
We will only contact you by email, SMS or telephone with your consent. If we contact you by post, we will not contact you again if you ask us not to.
You can change your contact preferences at any time by contacting us at: email@example.com.
Noah’s Ark will not sell or share personal details with third parties for the purposes of their own marketing.
We share data with organisations authorised to provide fundraising services to us, such as Your Hospice Lottery, who administrate our weekly lottery, and GoCardless and Stripe who manage our online donations.
Your information may be shared with us by independent fundraising organisations, for example online fundraising websites like JustGiving, Virgin Money Giving or Givey. If you consent to your data being shared with Noah’s Ark Children’s Hospice as part of making your donation or setting up a fundraising page on their website, they will provide your personal data to us. Please ensure you check their Privacy Policies to understand fully how they will process your data.
Where we use an external service provider to act on our behalf, we will disclose only the personal information necessary to deliver the service and will have a contract in place that requires the provider to comply with Noah’s Ark Data Protection and information security requirements.
We may disclose your personal information to third parties if we are obliged to by law, or the disclosure is ‘necessary’ for purposes of national security, taxation and criminal investigation, or we have your consent.
How we protect your personal information
We adopt appropriate data collection, storage and processing practices and security measures to protect against unauthorised access, alteration, disclosure or destruction of your personal or transactional data stored on our website and systems.
How we process your financial information
We use external payment service providers to process donations and payments by credit and debit card, or to administer direct debit donations. Your bank or credit/debit card details are not retained by Noah’s Ark.
We use Stripe to process one-off credit or debit card donations and payments.
We use GoCardless to administer monthly direct debit donations
Where we store your information
All information you provide to us or which is shared with us is stored on our secure servers.
On rare occasions, for financial or technical reasons, Noah’s Ark may need to use Internet Service Providers located outside of the European Economic Area.
In cases where we use external websites provided by other organisations such as Twitter or Facebook, then we would ask you to consult their Privacy Policies.
How long we keep your information
Care records are held until the child’s 25th birthday or 26th birthday if the child was 17 at conclusion of treatment, or 8 years after death.
Subject access requests
You have the right to see what personal data we hold about you. To obtain a copy of the personal information we hold about you, please write to us at:
Data Protection Officer
Noah’s Ark Children’s Hospice
3 Beauchamp Court
10 Victors Way
This document was last updated 09 November 2017